Skip to main content

Advertisement

Log in

Brief Report: The Feasibility and Effectiveness of an Advocacy Program for Latino Families of Children with Autism Spectrum Disorder

  • Brief Report
  • Published:
Journal of Autism and Developmental Disorders Aims and scope Submit manuscript

Abstract

Latino, Spanish-speaking families of children with autism spectrum disorder (ASD) face unique barriers in special education advocacy. Although advocacy programs are becoming more common in the United States, none of these programs target Latino families. This is a pilot study to examine the feasibility and effectiveness of an advocacy program for Latino families of children with ASD. Using a quasi-experimental design, 40 Latino family members of children with ASD participated in this study. Results demonstrated consistent attendance, low attrition, and high participant satisfaction. Intervention (versus control) group participants demonstrated significantly increased empowerment and special education knowledge, and stronger family–school partnerships. Findings provide preliminary support for advocacy programs for Latino families of children with ASD.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1

References

  • Balcells-Balcells, A., Giné, C., Guárdia-Olmos, J., & Summers, J. A. (2011). Family quality of life: Adaptation to Spanish population of several family support questionnaires. Journal of Intellectual Disability Research, 55, 1151–1163.

    Article  PubMed  Google Scholar 

  • Berument, S. K., Lord, C., Rutter, M., Pickles, A., & Bailey, A. (1999). Autism screening questionnaire: Diagnostic validity. British Journal of Psychiatry, 175, 444–451.

    Article  PubMed  Google Scholar 

  • Brislin, R. W. (1970). Back translation for cross-cultural research. Journal of Cross-Cultural Psychology, 1, 185–216.

    Article  Google Scholar 

  • Burke, M. M. (2013). Improving parental involvement: Training special education advocates. Journal of Disability Policy Studies, 23, 225–234.

    Article  Google Scholar 

  • Burke, M. M., & Sandman, L. (in press). The effectiveness of a parent advocacy training upon legislative advocacy. Journal of Policy and Practice in Intellectual Disabilities.

  • Canino, G., Vila, D., Normand, S. T., Acosta-Pérez, E., Ramírez, R., García, P., & Rand, C. (2008). Reducing asthma health disparities in poor Puerto Rican children: The effectiveness of a culturally tailored family intervention. Journal of Allergy and Clinical Immunology, 121, 665–670.

    Article  PubMed  Google Scholar 

  • Cohen, S. (2013). Advocacy for the ‘Abandonados’: Harnessing cultural beliefs for Latino families and their children with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 10, 71–78.

    Article  Google Scholar 

  • Davis, R. E., Resnicow, K., & Couper, M. P. (2011). Survey response styles, acculturation, and culture among a sample of Mexican American Adults. Journal of Cross-Cultural Psychology, 42, 1219–1236.

    Article  PubMed  PubMed Central  Google Scholar 

  • Glaser, B. G., & Strauss, A. L. (1989). Fourth generation evaluation. Newbury Park, CA: Sage.

    Google Scholar 

  • Goddard, C., & Harding, W. (2003). Selecting the program that’s right for you: A feasibility assessment tool. Waltham: Education Development Center Inc.

    Google Scholar 

  • Gutierrez, L. M. (1990). Working with women of color: An empowerment perspective. Social Work, 35, 149–153.

    Google Scholar 

  • Hughes, M. T., Valle-Riestra, D. M., & Arguelles, M. E. (2002). Experiences of Latino families with their child’s special education program. Multicultural Perspectives, 4, 11–17.

    Article  Google Scholar 

  • Koren, P. E., Dechillo, N., & Friesen, B. J. (1992). Measuring empowerment in families whose children have emotional disabilities: A brief questionnaire. Rehabilitation Psychology, 37, 305–321.

    Article  Google Scholar 

  • Magaña, S. M. (2000). Mental retardation research methods in Latino communities. Mental Retardation, 38, 303–315.

    Article  PubMed  Google Scholar 

  • Mercadante, M. T., Evans-Lacko, S., & Paula, C. S. (2009). Perspectives of intellectual disability in Latin American countries: Epidemiology, policy, and services for children and adults. Current Opinionin Psychiatry, 22, 469–474.

    Article  Google Scholar 

  • Puente, C., & Castillo, M. (2015). Latino parent leadership support project curriculum.

  • Shapiro, J., Monzo, L. D., Rueda, R., Gomez, J. A., & Blacher, J. (2004). Alienated advocacy: Perspectives of Latina mothers of young adults with developmental disabilities on service systems. Mental Retardation, 42, 37–54.

    Article  PubMed  Google Scholar 

  • Summers, J. A., Hoffman, L., Marquis, J., Turnbull, A. P., Poston, D., & Nelson, L. L. (2005). Measuring the quality of family–professional partnerships in special education services. Exceptional Children, 72, 65–83.

    Article  Google Scholar 

  • Summers, J. A., Marquis, J., Mannan, H., Turnbull, A. P., Fleming, K., Poston, D. J., et al. (2007). Relationship of perceived adequacy of services, family–professional partnerships, and family quality of life in early-childhood service programmes. International Journal of Disability, Development, and Education, 54, 319–338.

    Article  Google Scholar 

Download references

Acknowledgments

Support for this study was provided by a research grant from the Organization for Autism Research.

Author Contributions

Meghan M. Burke designed and directed this study and drafted the manuscript. Sandra Magaña consulted regarding the design and reviewed the manuscript. Marlene Garcia collected the data and reviewed the manuscript. Maria P. Mello analyzed the open-ended responses and reviewed the manuscript.

Funding

This study was funded by the Organization for Autism Research.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Meghan M. Burke.

Ethics declarations

Ethical Approval

All applicable international, national, and/or institutional guidelines for the care and use of animals were followed.

Human and Animal Rights

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed Consent

Informed consent was obtained from all individual participants in the study.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Burke, M.M., Magaña, S., Garcia, M. et al. Brief Report: The Feasibility and Effectiveness of an Advocacy Program for Latino Families of Children with Autism Spectrum Disorder. J Autism Dev Disord 46, 2532–2538 (2016). https://doi.org/10.1007/s10803-016-2765-x

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10803-016-2765-x

Keywords

Navigation